My views on epilepsy and how it affects my life, just some insight on it. All explained in the video. Featuring actual footage of me having seizures and pictures from the hospital. Thank you for watching, it really means a lot to me. Comment, rate, subscribe, all that good stuff. A good group that is specifically about JME; health.groups.yahoo.com A good site for information on all different types of seizures; www.epilepsy.com
Video Rating: 4 / 5
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23 comments
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Skating18ify says:
February 8, 2012 at 6:22 am (UTC -4)
You and I have something in common!! My favorite hobby is bowling though. I had many seizures in my life. And I was in the hospital for them when? I was younger.
sapphirezobi says:
February 8, 2012 at 6:42 am (UTC -4)
sweety don’t worry you gotta be brave don’t listen to the barking dogs just keep on moving I a[[reciate your spirit recently a girl lost her life cause of epileptic damage to her brain sadly?
God Bless you
AcidReflux27 says:
February 8, 2012 at 7:23 am (UTC -4)
I was diagnosed with tonic clonic seizures when I had my first grand mal in Jr. high. My parents tried to convince me to keep it a secret until the day I had a seizure and drove off of a cliff. You and your family are very strong, and? you don’t know how many people videos like this will help.
epicawesomesauceguy says:
February 8, 2012 at 7:46 am (UTC -4)
I want to know.
What does it feel like to have? a seizure
arng31 says:
February 8, 2012 at 8:37 am (UTC -4)
You are a lovely, strong & smart young lady. I am impressed with you and what you did for us with out and those with Epilepsy. I hope you? know God will not give you anything you are not strong enough to handle. I think that you have found something in yourself to help teach others of how to handle Eiplepsy and teach those who have no idea what it is. Well stay strong and God Bless
TheChriscrosbie says:
February 8, 2012 at 8:52 am (UTC -4)
Jenn, you are fantastic! Thanks for showing everyone what epilepsy is like for you. It has a whole range of symptoms that can be misunderstood for other things like mental illness, addiction, etc. It’s especially hard for teens,who just want to be like everyone else at this stage in life, so kudos to? you for doing your own thing and educating the public. People with seizures need to talk about it and improve understanding. I know I’ll never be cured, but it doesn’t stop me.
temptationswings29 says:
February 8, 2012 at 9:00 am (UTC -4)
much fucking respect to you, i am all? too familiar with this!
untyroo says:
February 8, 2012 at 9:33 am (UTC -4)
@Xleah01 I had the same? problems and I found the best think to do was to just tell everyone about it and be honest.
Xleah01 says:
February 8, 2012 at 9:42 am (UTC -4)
I’m 15 and i have epilepsy, and i realised the start of 2010 when i fainted at school and the ambulance collected me, i stayed in hospital for 2 weeks and i got told about my condition, it contains me twitching alot, but mainly? flashing light but my main problem is me staring at alot things and moving my arms, at school people think i’m a freak but it dont bother me cos wer’e all normal really
but great video it made me realise i have nothing to be worried about:)
SandritaRowan26 says:
February 8, 2012 at 10:04 am (UTC -4)
Oh, before the first trip to the? hospital I was actually injured due to seizures, which at that time we didn’t know. But I doubt a head injury would cause loss of muscle control and then loss of conscienceness. And I told it exactly in that order on the 1st trip to the hospital. Love the vid!
SandritaRowan26 says:
February 8, 2012 at 10:55 am (UTC -4)
Then a little more than a month later I had a seizure and shipped to the hospital in an ambulance. Fun! A different hospital. Told them the same thing. They probably thought that I drank the night before, which I don’t. Then? around 5:00pm I saw my uncle; I was placed on the 4th or 5 floor, I don’t remember….Anywho, saw my uncle for about 5 minutes and I went into a seizure. So, it took all of that until they finally diagnosed my with epilepsy. Grand Mal seizures.
SandritaRowan26 says:
February 8, 2012 at 10:58 am (UTC -4)
I just realized that I have 103 friends on Facebook and? I have epilepsy. Go figure! This was refreshing to watch, of course I was just recently diagnosed with epilepsy Aug 23, 2011. I ended up in the hospital 2wice. 2 different hospitals. The 1st hospital I told them that I lost conscienceness, and lost muscle control. They told me it was amnesia. Well, duh! Thanks doc obvious! Not you. (the user of this vid or anyone else, that’s what I was thinking).
UltimateBokanator says:
February 8, 2012 at 11:00 am (UTC -4)
I heared there is an ancient cure for Epilepsy that was well known around the Arab world, and in Iraq to be specific … I am 100% sure there is a cure for it? somewhere … Stay strong kid
msfreebyme says:
February 8, 2012 at 11:13 am (UTC -4)
=O? I have JME too…woot! I take topamax and banzel…used to be on keppra
I’m 19 and I’ve had mine since 8th grade..first one in front of the whole school
I twitch the same way too
Like your vid….was very entertaining and I never see people who are (I’m guessing your around me age now) younger doing videos like this. Its refreshing to see.
Keep it up!
djmaxpaul says:
February 8, 2012 at 11:52 am (UTC -4)
Respond to? this video… Need to see Lewis Carroll, Theodore Rosevelt
djmaxpaul says:
February 8, 2012 at 12:46 pm (UTC -4)
Respond to this video… 10 years ago I was volunteer at hospital before end up who I am.? I heard a lot from ppl how they would like to die. Would Like Too And It Push Me More To Stay a Live
djmaxpaul says:
February 8, 2012 at 1:13 pm (UTC -4)
@Kelsrizzle I tried Stress management,and didnt work but I dont know why nothing is wrong when I am around ppl,looks like I dont think about my problem. Looks like it is my? stress at home. Still have problem to get a job when ppl see my scars from head injury. I dont think every one is awesome, I think every one should be human. It not looks like that.
Kelsrizzle says:
February 8, 2012 at 1:20 pm (UTC -4)
@Kelsrizzle she also called me mentally challenged. Bull crap! Having epilepsy has nothing to do with that part of your brain. Just google famous people with epilepsy. Lewis Carroll, Theodore? Rosevelt, etc.
Kelsrizzle says:
February 8, 2012 at 1:34 pm (UTC -4)
Thank you for posting this video
Not enough people understand epilepsy. I even had my electives taken away from me in highschool by the school counselor. The nurse “couldn’t handle” me be in her office so often because of my seizures that they decided to only have me in school for the second have of the day, only letting me take my generals. Not enough people are? educated in epilepsy. I’m in college now and I still have problems with people overreacting. Again, thank you for this video
Kelsrizzle says:
February 8, 2012 at 2:20 pm (UTC -4)
@djmaxpaul Seeing that you remember what is happening during the seizures, you might? have psychogenic seizures. That is what I have. Medication can’t control it. You need to learn how to control your stressors that trigger your seizures. Stress management could work.
ScrewTheLiving says:
February 8, 2012 at 3:16 pm (UTC -4)
@djmaxpaul? you’re awesome.
djmaxpaul says:
February 8, 2012 at 3:25 pm (UTC -4)
Sorry for my spelling?
djmaxpaul says:
February 8, 2012 at 3:59 pm (UTC -4)
Now Im on Lorazepam 1? mg 4 a day, Gabapentin 300 mg 6 a day , Lamotrigine 250 mg 4 a day, Diazepam 10 mg 3 a day , Dilantin 100 mg 4 a day . All together 21 a day.